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SORD's Support

International Information Operation

Mission

  • To provide domestic patients with information on rare diseases including patient organizations and research institutions from overseas that is hard or impossible to access in Japan.

  • To develop the environment where Japanese patients can be connected to international patient organizations and patient advocacy groups.

Cooperative Organization

  • Patient Support Organizations All Over the World

International Information Operation Overview

Build a worldwide network, collect information on rare diseases through the network and provide it to Japanese patients.

Informative Project

We collect rare disease information which is hard or impossible for Japanese patients to access (eg. International patient organizations and support organizations, international conferences, medical papers, and news regarding rare diseases) and provide it to Japanese patients.

International Networking Project

  • We act as a bridge between Japanese patients with rare diseases and international patient organizations for them to share timely information.

  • Also, we aim to contribute to improve the quality of life of rare disease patients not only in Japan but in the world as well by cooperating with support organizations worldwide.