The Supporting Organization for Patients with Rare Diseases

Our aim in holding Rare Disease Forum is to help the patients with rare disease recognize:

the importance of building goal-oriented connections with the same disease patients
the needs of making an action by themselves and sharing what to do to cooperate with domestic and overseas medical / research institutions.

Apr. 28, 2011	We decided to the holding day, 'Rare Disease Forum 2011 in Tokyo'.
Mar. 15, 2011	We decided to temporarily postpone 'Rare Disease Forum 2011 in Tokyo'.
Feb. 6, 2011	We held 'Rare Disease Forum 2011 in Kyoto'.