• About REP Support

• Domestic Operation

• International Operation

• About Rare Disease Forum

• 2011 in Kyoto

• 2011 in Tokyo

SORD's support is to be empowerment for patients to make their own decision with enough knowledge, choices, and opportunities even if they are rare.

SORD's domestic operation is the gateway for rare disease patients.
We aim to assist patients in finding the same disease patients through "Re:me", a Social Networking Service dedicated for rare disease patients, and in establishing a patient organization with clear purpose.
After you establish a patient organization, we will offer further supports with international information and research Project (PRiG Project).
For those who are thought to be the only case reported in Japan or still undiagnosed, we are here to support you individually.

In the case where you can't find information on a disease in Japan, we provide you with overseas information on the disease, patient organizations, and research institutes so that you can cooperate with those organizations.
If needed, we will help you with English-Japanese translation.
We will also provide support when you attend conference held by patient organizations all over the world.

We have launched a basic research project for rare diseases called "PRiG Project" with the National Institute of Genetics and Tokai University School of Medicine.
Our aims with this project are:

• to establish an information Bank of iPS cells and analyzed genome information of SORD's registered patients who want to participate in this project

• to provide the information to researchers who are willing to conduct further research with it

This research project is very important as it can be the basic materials for the further research to develop the treatments and therapeutic a products for rare diseases.