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Feb., 2011
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We held 'Rare Disease Forum 2011 in Kyoto' - the first forum about rare disease in Japan.
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Sep., 2010
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We launched the first private-sector-driven project - iPS cells and analyzed genome information bank project - for rare disease with National Institute of Genetics and Tokai University School of Medicine.
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July, 2010
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As the first example with an official support by the public administration, we succeeded to reach the summit of Mt. Fuji with a rare disease patient with a wheelchair assisted by an alpinist Miura Yuichiro.
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Mar., 2010
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Under the aim of collecting information needed for establishing systems for medical examination and care and developing treatment methods and medicines with the latest technologies, we conducted investigation of the actual situation surrounding the rare disease patients that had never beendone before.
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Jan., 2010
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For the first time in Japan, we established an online message board to reconnect socially isolated rare disease patients.
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Sep., 2009
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We made the first try to climb Mt.Fuji with a rare disease patient with a wheelchair assisted by an alpinist Miura Yuichiro.
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Dec., 2008
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SORD's radio program started.
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